Kutheni le nto yenzeke kum?
I-Ривил kuqinisekiswa: oogqirha baze bafike ekupheleni, abazi ukuba ziphi na izifo. Kwaye awazi ukuba ungathatha njani isifo se-sclerosis, kukho unyango olungakumbi olufunekayo kule nto. Kwaye into ephambili yindlela yokuphatha ngayo. Izigidi zeengxelo zonyango zenziwe, amaqhinga okuthatha imishanguzo ayimiselwe, kodwa ngexesha ngalinye elithemba "kwiingubo ezimhlophe", isigulane sivuma ukuba sizame.
Ngenxa yokungabakhathaleli kwakhe, uRicquel wabonakala engumntu ongathandabuzekiyo. Iingcali zengqondo kunye nomlobi weendaba, wayengumfazi oyisibonelo, wabhala iingxelo zabantwana, wakhuphula abantwana abathathu waza walindela ukuzalwa kwonyana wesine. I-Rivil yayimiselwe ukuba i-cearean, kodwa into engaphumelekanga ekusebenzeni, ukutyhilwa kwegazi kubonakalisiwe, umfazi obesele ebesele elahlekelwe igazi elikhulu. Kakhulu kangangokuthi kwi-bank yegazi kwakungekho ngokwaneleyo, kwafuneka ukuphose isikhala phakathi kwabavukuzi (kwakuseDonetsk) ukunikela ngegazi kumama oselula. Abavukuzi bazinikezela. Kwaye, ngokusobala, kunye negazi lomnye umntu, umzimba ufumene i-neuroinfection. Umama nendodana bahlala bephila, kodwa ngoRivil, kwakubomi obuhluke ngokupheleleyo kunye nokuxilongwa kwe-multiple sclerosis kunye neqela lokuqala lokukhubazeka.
"Ekuqaleni kwakumangalisa," kusho uRivil. - andizange ndiyiqonde ukuba kutheni le nto yenzeke kum, -noko-nothando kunye nobomi. Ndandifuna izizathu, kodwa andizange ndifumane i-multiple sclerosis, andinakufumana unyango oluthile. Ndahlalutya zonke iingcamango nezenzo zam. Ndabona ukuba ngeminyaka engama-34 andingazange ndikwazi ukukwazi kwam, kwakuxhomekeka kwaye yenzani abanye abantu abayidingayo, kungekhona mna. Andizange ndimthande kwaye ndingafuni. Ndafika kwimbono yenhliziyo yam inkohlakalo-imbangela yengqondo ye-multiple sclerosis. Mna, mna, ndingazange ndiyithande umyeni wam, kodwa kunoko ndiyamesaba. Yaye yazigxotha kwikona. Izizathu zokuba ziphina izifo zihlambalaza, ukungabi nantliziyo yolonwabo, i-hormone yolonwabo, ukwaneliseka. Esi sifo sitshintshe ngokupheleleyo. "
URivil uthe uhlonipha ukugula kwakhe. Unokubulala umntu, okanye umenze abe namandla ngokungaqhelekanga. Isimo sesibini mhlawumbi sihlukile, i-multiple sclerosis ayiphathwa kwaye ihamba ngokukhawuleza, kodwa ngokuqinisekileyo iguqula umntu ube yi-rubble. "Ngelo sifo, uhamba njengefu," uqhubeka nomhlobo wam. - Iiplato ze-sclerotic zonakalisa iimbumba zeimbilini ze-nerve, zibonakala zibala. Umntu uyabaleka, akayi kubona, akayiva. Ufuna ukuya, kodwa imilenze yakho ayayazi njani. Ufuna ukuthatha into, kodwa ungathathi izandla zakho. Ngaloo ntsasa ekhethileyo, andisayi kubamba ipeni okanye inaliti. Iminwe yayingandithobeli, kodwa imilenze yam inqabile ukuhamba. "
Le meko yandulelwe yiminyaka emihlanu yonyango lwama-hormone eklasini kwizibhedlele ezininzi, unyango olungezinye. Isibindi seRivil sele sineziphumo eziphambili ze-prednisolone kunye nezinye izixhobo ezinobunzima bee-pharmacy. Umbono wehla, intetho yaba yinto engavumelaniyo, yaqhutyelwa ikakhulu kwiintonga. "Ndandidumala ngokupheleleyo ngamayeza. Ndandiqonda ukuba ukusuka kulolu cala andinako ukulinda uncedo, "kusho uRivil. - Ndaziva ukuba bezama kum. Ukususela ngoko, iminyaka eyi-16 idlulile, kodwa akukho nto ishintshile kunyango lwe-multiple sclerosis. Ndidibana nabantu abatsha abaphendukela kum uncedo, okufanayo: okufanayo kunye neendlela. Kwaye okugqibela: isihlalo sabakhubazekile, umbhede, kwaye-akukho mntu. Ndangena ebukhosini, kwaye, ngokuqonda oko, ndaqala ukukhangela enye indlela. "
Ukususela kwimbono yezobisi ezisemthethweni, u-Rivile wathatha izinto eziyinqatha. Nsuku zonke wayecinga indlela inkampani yamajoni angamaqhosha aneempuphu ezikhethekileyo yayihlambulule isibindi sakhe, isiphula iiflethi ze-sclerotic. Wathetha nomzimba wakhe, wakhuthaza iiseli ezigulayo (zihlanya okanye ziphosa) zihlala zihlangene kunye nempilo. Kwakunzima kakhulu kunokusela ipilisi. Wazifanela etafileni yokusebenza ezulwini. Ukucebisana kwee-angelfish zonyango zenze isigqibo sokutshintsha isibindi seRivil kungekhona yonke into, kodwa kwezinye iindawo. Yaye wayelungelelanisa malunga nendlela i-lobule emva kweso sithola ngayo. Emva kweminyaka emibini emva kokuba ithunyelwe kwi-ultrasound, ugqirha akazange akholelwe amehlo akhe: isibindi sasinempilo. Ngengcamango yakhe, uRivil wahlamba phantsi kwemifula yamanzi yamanzi asezulwini, ahlamba isifo kuyo yonke iseli. Wayejamelana ne-multiple sclerosis ngeengcinga zokudala.
Ingxoxo kunye ne-baracabala
"Ndikholelwa kum amandla am phakathi, ukuba umzimba wam ngumkhangeli omhle owawukhathele nge-refueling ngepetrolol," kuchaza uRivil. - Ndaqala ukusebenza kunye nomzimba wam. Ndihlala ndivuka ngomsindo, ndibuliswa kunye namalungu onke, apho, ngendlela, ndiyenzayo nanamhla. Ngaba wayesebenza ngokusa kwimiba yakhe yeengcinga kunye nezitho. Xa ugule, kufuneka ucinge ngeyona nto, kodwa usithande. Ndaqala idayari yezenzo ezilungileyo, ndaqala ukubheka abo babuthathaka kunam, endibanceda. Iminwe yam isandiphulaphule kakubi, kodwa ndenza iipopi ezimbini zokuqala ndahamba nabo kwisiqabane se-oncology se-Kiev. Kamva ukutyelela kwangena kwinkqubo. Wathetha nabantwana, wabuza ngempilo yakhe, wamomotheka, wahlabelela iingoma kunye nabo, wabonisa imibukiso, wabhala iindlovu. Omnye wabo uphathelene nomhlaza wesifo somhlaza womhlaza we-baracabal, abafokazi besinye iplanethi abantu bonke abayikwesabayo, kodwa uyesaba ngokwenene. Ndandinceda, ndinceda abanye. "
URivil akazange avumele ukuba abathandekayo bakhe bazisole, wayeka ukuzijonga njengomntu ogulayo. Kwaye, oku, wathi, wuleza ukuphuka nomyeni wakhe. Akazange avumele inkululeko engaphakathi awayeyifumene nayo. Baqhawule umtshato. Kwaphela iminyaka emithathu wayezibandakanye naye, kodwa ngelo xesha, njengokungathi akazange azibonele. "Emva kokuba ndifumanise ukuba ndiyakwazi ukuhamba ndingenazo iintonga," kusho uRivil. - Ngexesha elihambayo ndihamba kunye neengxowa, kwaye ndaziva ukuba bephazamisekile. Ndachengelwa ngumfazi. Wathi: "Uhle kakhulu, mncinane, kutheni ufuna iincuku?" Ndacinga: "Kwaye, ngokwenene, kutheni?" Abahlobo bam memele ukuba ndihambe, ndandisoloko ndihamba ngokuqhelekileyo, kodwa ndingenakuvakalelwa kwiinyawo zam. Ndibe neentloni ukuvuma ukuba andinakuzikhangela. Sifumana ibhasikidi, ndahlala phantsi, ndawabeka iinyawo zam ezinyaweni waza ndahamba. Kungekudala, ububele bubuyela ezinyaweni zam. Umgaqo oyintloko wokusinwa kwesi sifo awuyikuwubeka esihlalweni sobukhosi, mhlawumbi uya kuwunqoba yonke intsimi yakho, uya kufuna idini kunye nokunqula. "
Ukukhuthazwa, isinyathelo ngamanyathelo kususwe iRivil ekuxilongweni kwe-multiple sclerosis, kwakuyimpilo ngokwayo, umnqweno wokwenza into enhle kwaye inokunceda. Waqala ngeqonga lebhokisi lokugulisa izigulane, ababenomdlali wakhe. Wabhala iindaba ezimnandi, apho abalinganiswa abakhulu babetha ngokugula izifo zabo, baze babeke nezigulane ezincinci. Ubomi bembhedlele yabantwana abaphethwe yi-chemotherapy, alukhanyanga ngeziganeko ezivuya kunye nokuhlukahluka. I-fairy fairy I-Rivil kunye nemisebenzi yakhe yakhupha abantwana ngaphandle koxinzelelo. Wayesebenza kunye nomntu wonke kunye kunye ngamnye ngalunye, kwaye iziphumo zatshitshisa.
"Ndandibandakanyeka nentombazana eneminyaka elishumi elinamibini eyayiqhutyelwa kabini," kutsho lam iqabane. "Wayenomkhuhlane wesifo emlanjeni wakhe." Kwamanye amazwe iifowuni ezinjalo zibonwa zibulalayo, zingasebenzi. I-tumor ikhula kude, emva koko konke, umntu uyaqhawula. Xa ndaqala ukufundisisa nesigulane sam, wayesele ephethe izigulane kwizitho eziseduze. Sasisebenza kwindlu yokuhlambela, siyihlobisa ngokuhlobisa, sahlela amakhandlela. Kwaye bavule amehlo abo bajonga iingubo zesisu kunye neenqwelo zokukhupha ikhefu ezikhuphayo ezaziqoqa kwaye zazisusa. Emva koko baphendulela isilwanyana, kwaye intombazana yayicinga ukuba iMeyi imvula entsha ingabhubhisa zonke iindawo zokugula ezivela kuye. Xa uthe uvakalelwa isiphunga seentyantyambo egadi, amanzi aphelile. Emva kweenyanga ezintathu zokufunda, imifanekiso yokulawula i-MRI ibonise ukuba i-tumor yayisisombululo. Oogqirha bathuka. Emva koko le ntsapho yafudukela eKhanada. Asizange sibonane iminyaka emihlanu. Kungekudala babizele-isigulane sam silinganiselwe. "
Ukukhanukela ubomi
U-Rivil uthe abantu abanqwenela ukubuya. Amaphesenti angama-90 abantu abanezifo ezinzima ezifana nokuhlala kwi-epicenter of compassion for their person. U-Rivil uyakhumbula: "Ngokweengqondo, kwakunzima kum ukuba ndilahle intonga. - Xa ungafani nabanye abantu, usebenzisa ibhonasi yenceba: musa ukuma emigqeni, vumelana nawe, bahlale belikhumbula. Ndandinomntu emva kokuba izifundo ezinqwenela ukuqhubeka. Wathi: "Andiyazi ukuba ndiya kuphila njani ukuba ndibe ngcono." Umgaqo wokuqala wokubuyiselwa kukudelela ukuxilongwa kwakho. Bathi kuwe: unento ethile, kwaye wena-ungakholwa. Ukuba umntu uyaziva ephilileyo kwaye uya kumgqirha, uba ngumntu ongathandabuzekiyo. Kubandakanya ngokuphathelele ukugula kwakhe. Kwaye kubaluleke kakhulu ukwenza, jongela into ethile, ube nenjongo ebomini. E-Western Ukraine kukho indoda ethatha umdlavuza ngesaba. Kuzisa izigulane ezingenasiphelo. Uthumela izihlobo, kwaye yena ngokwakhe ubeka isigulane kwisithuthuthu kwaye uqhubela ehlathini ukukhwela.
Ekuqaleni bahamba ngokuthula, kodwa ngenye indlela isithuthuthu siqokelela isantya esiphezulu size siphoswe ngxolongo. Umgibeli uyaqaphela ukuba baya kuphuka ngoku, ngokunamathela kumqhubi (izibambo zakhe zaphulwa ngokuphindaphindiweyo emva kokubanjwa kwezigulane). Okwesibini ngaphambi kokufa, umntu uyalibala yonke into, aze aphendule yonke into ebalulekileyo ebomini bakhe, aqinise ixabiso layo. Emva koko kuvela ukuba akukho ntsalela ezayo, kodwa umbono wehlabathi utshintsha kule mizuzwana embalwa. Emva koko, isigulane asinayo injongo, akafuni nto kwaye ifa ngenxa yokukhathala nokungabi nalutho. Kodwa ngexesha lokudibana kunye nokufa, unxanwa lobomi bubuyela kuye. Le ndlela inceda wonke umntu. "
Ixesha lokugqibela uRivil wathatha iimvavanyo iminyaka elishumi edlulileyo - ekubeni akazange aye ezibhedlele. Akanomdla kule nto. Ukhangelekile kwaye uthi ubomi bakhe emva kokugula kuye kwaba mnandi ngakumbi kwaye uyonwabile. Kakade! Uninzi kunje wadibana nothando lokwenene-indoda yakhe yangoku, Igor. Intombi uRivilville ngasese evela kumama wakhe epostile kwindawo yakhe yokuthandana. Ekuqaleni, uluhlu lwabafakizicelo ababenolwazi lwabalelwa ku-900, ngokuthe ngcembe inani labaviwa liye lancitshiswa laba bathathu. Kwisithombe u-Igor wabonakala kuRivil mncinci, kodwa kakhulu. Wagqiba ekubeni ajonge naye, ukuze aqondise intombi. Kodwa, xa bedibene, abazange bahlukane. Igor wavula umhlaba we-ayurveda. Watshintshela ekudleni kokutya, wayala itiye kunye nekhofi, waza waba nefuthe kakhulu kwifilosofi yaseMpuma emva kokuya eIndiya. Igor noRivil bafana nabantu abanengqondo. Ababonke basebenzayo kwiprojekthi "I-Fairy Tale House" kwizigulane zomhlaza, esebenzisene ndawonye kwidlaterha yabantwana, banandipha ubomi kunye kunye nokufumanisa iinkalo ezitsha ngoncedo lomnye nomnye.
"Njengomthetho, ukugula, abantu bayazityhawula ngombuzo: kutheni? Rivil wacinga. - Kodwa bambalwa abantu bayabuza: kutheni? Ndaziphendulela mna: ukuba andizange ndigule, ukukhangela kwam iingcamango kwakungeke kwenzeke, kwaye andinakukunceda abantu abaninzi. Ndahlala kwigaraji phambi kokugula, ndaza ndafika kwibhotwe. Ndabona: umzimba womntu unamandla amakhulu, kufuneka uwuvule. "